Resources and organizations

UN Convention on the Rights of Persons with Disabilities (OHCHR)

InternationalIntergovernmental organization

The international human rights treaty on disability, adopted by the UN General Assembly on 12 December 2006; page published by OHCHR.

ADA.gov (U.S. Department of Justice, Civil Rights Division)

United StatesGovernment agency

U.S. Department of Justice site on the Americans with Disabilities Act, with guidance, legal documents and a form to report violations.

IDEA website (U.S. Department of Education)

United StatesGovernment agency

U.S. Department of Education site gathering Individuals with Disabilities Education Act information and resources for infants, toddlers, children and youth with disabilities.

Job Accommodation Network (JAN)

United StatesGovernment-funded service

Free, expert and confidential guidance on workplace accommodations.

Status: its website was developed with a grant from the U.S. Department of Labor's Office of Disability Employment Policy

GOV.UK guidance on disability rights

United KingdomGovernment agency

UK government guidance on protections against disability discrimination, naming the Equality Act 2010 as the main UK law.

Equality Advisory Support Service (EASS)

United KingdomHelpline or advice service

Information and advice on discrimination and human rights issues in the UK, by helpline and online form.

Status: GOV.UK says it replaced the helpline previously run by the Equality and Human Rights Commission

Irish Human Rights and Equality Commission (IHREC)

IrelandGovernment agency

Works to protect and promote human rights and equality in Ireland; its site has a Disability section and links on taking a case to the Workplace Relations Commission.

Australian Human Rights Commission

AustraliaGovernment agency

Works to uphold human rights in Australia and to help resolve discrimination complaints; has a Disability rights section.

Canadian Human Rights Commission

CanadaGovernment agency

Canada's national human rights institution: screens and litigates discrimination complaints and promotes compliance.

Status: describes itself as Canada's national human rights institution

Child Mind Institute

United StatesCharity or nonprofit

Independent nonprofit focused on children's mental health and learning disorders, working through science, education and care.

Status: tax-exempt charitable organization under Section 501(c)(3), as stated on its site

Find A Helpline

InternationalHelpline or advice service

Directory of verified helplines, hotlines and crisis lines offering chat, text or phone support in more than 175 countries.

Status: public service operated by ThroughLine Limited; names the International Association for Suicide Prevention and LifeLine International as key partners

South African Depression and Anxiety Group (SADAG)

South AfricaHelpline or advice service

South African mental health organization offering toll-free helplines, including a suicide crisis line, and support groups.

Also listed in: IOCDF Global Partners

Southern African Association for Learning and Educational Differences (SAALED)

Southern AfricaSupport and advocacy organization

Association supporting educators, therapists and parents in creating inclusive learning environments, with memberships, webinars and an annual seminar.

International Society for Augmentative and Alternative Communication (ISAAC)

InternationalSupport and advocacy organization

International society working to improve the lives of children and adults who use augmentative and alternative communication (AAC).

World Autism Organisation

InternationalFederation or network

International autism membership organization, active since 1998, with Full, Affiliate and Individual membership.

World Health Organization: Autism fact sheet

InternationalIntergovernmental organization

Fact sheet from the World Health Organization titled Autism, opening with key facts about autism spectrum disorder.

Autism Society (Autism Society of America)

United StatesCharity or nonprofit

US organization that connects the autism community with support, resources, news and advocacy.

Status: displays a BBB Accredited Charity seal

Autistic Self Advocacy Network

United StatesCharity or nonprofit

Nonprofit run by and for autistic people that works to advance disability rights and equal access, rights and opportunities for autistic people.

Status: 501(c)(3) nonprofit organization

Leadership: run by and for autistic people

CDC: Autism spectrum disorder

United StatesGovernment agency

Public information from the US Centers for Disease Control and Prevention (CDC) about autism.

NIMH: Autism spectrum disorder

United StatesGovernment agency

Public information from the US National Institute of Mental Health (NIMH) about autism.

Organization for Autism Research (OAR)

United StatesCharity or nonprofit

US organization that funds applied autism research and offers scholarships, grants and free evidence-based resources.

Status: links to charity evaluators (Charity Navigator, GuideStar) from its site

Leadership: describes itself as founded and led by parents and grandparents of autistic children

Autism Alliance of Canada

CanadaFederation or network

Pan-Canadian autism network with a broad and diverse membership.

Autism Canada

CanadaCharity or nonprofit

Canadian charity that advocates for and supports autistic people, their families and caregivers across Canada.

Status: registered charity (charitable registration number shown on the site)

ADHD Foundation: The Neurodiversity Charity

United KingdomCharity or nonprofit

UK charity offering advocacy, support, training and research for people with ADHD, autism and other neurodevelopmental conditions.

Status: registered charity in England and Wales

Leadership: describes itself as "the largest user-led organisation of its kind in Europe"

Autistica

United KingdomCharity or nonprofit

UK charity that funds autism research and campaigns to improve the lives of autistic people.

Status: registered charity; company limited by guarantee in England and Wales

National Autistic Society

United KingdomCharity or nonprofit

UK charity that provides support, guidance and advice to autistic people and their families and campaigns for better rights, services and opportunities.

Status: registered charity in England and Wales and in Scotland; company limited by guarantee

NHS: Autism

United KingdomGovernment agency

Public information from the UK National Health Service about autism.

Scottish Autism

Scotland (United Kingdom)Charity or nonprofit

Scotland's autism charity, based in Alloa and registered with the Scottish Charity Regulator (OSCR).

Status: Scottish charity registered with OSCR

AsIAm

IrelandCharity or nonprofit

Irish autism charity that provides autism information, resources and guidance and works to make Irish society more inclusive of autistic people.

Status: charity (registration numbers shown on the site)

Amaze

AustraliaSupport and advocacy organization

Peak body for Autistic people and their supporters in Victoria, Australia, with helplines, training and advocacy.

Autism Spectrum Australia (Aspect)

AustraliaCharity or nonprofit

Australian autism-specific service provider offering schools, therapy, assessments, adult community programs and research.

Status: displays a registered charity icon

Altogether Autism

New ZealandSupport and advocacy organization

Free, confidential autism information and advice service in Aotearoa New Zealand, with workshops and events.

Autism New Zealand

New ZealandCharity or nonprofit

New Zealand organization that supports, informs and educates autistic people and their support networks.

Status: site menu lists "Structure & Charitable Objectives"

Autism-Europe

BelgiumFederation or network

International association based in Brussels that works to advance the rights of autistic people and improve their quality of life across Europe.

Autisme France

FranceCharity or nonprofitSite in French

French national association of families with autistic children and adults: advice and support for families, information and advocacy for autistic people's rights.

Status: describes itself as an "Association reconnue d'utilité publique" (association recognized as being of public utility)

Leadership: describes itself as an association of families with autistic children and adults

Autismo España

SpainSupport and advocacy organizationSite in Spanish

Spanish organization based in Madrid that works for quality of life and equal opportunities for people with autism and their families, with services, training and advocacy.

Bundesverband autismus Deutschland e.V.

GermanyFederation or networkSite in German

German national umbrella federation of regional autism associations, with information, a legal guide and a search for regional contacts.

Status: registered association (e.V.)

Nederlandse Vereniging voor Autisme (NVA)

NetherlandsSupport and advocacy organizationSite in Dutch

Dutch autism association in De Bilt working toward an autism-friendly society, with information, meetings, an advice line and advocacy.

Status: shows ANBI and CBF logos on its site

Action For Autism (India)

IndiaCharity or nonprofit

National not-for-profit organization in India offering assessments, education, employment and family support, assisted living, training, research and advocacy.

Status: states it is registered under Section 80G of the Income Tax Act, 1961, and under the Societies Registration Act, 1860

Autism Association (Singapore)

SingaporeSupport and advocacy organization

Singapore social service organization providing education, vocational training, day activity centers and caregiver support for autistic people across their lives.

Status: describes itself as one of the Social Service Agencies in Singapore

Autism Resource Centre (Singapore)

SingaporeCharity or nonprofit

Singapore non-profit charity serving autistic people through life with education, employment services and family support.

Status: describes itself as a non-profit charity organization

Autism Society of Taiwan

TaiwanFederation or networkSite in Chinese (Traditional)

Taiwan's national autism organization whose members are parent groups, associations and foundations serving autistic people, with resources on assessment, therapy, education and adult services.

Status: shows a society registration number on its site; its keywords describe it as a non-profit organization

Developmental disability support policies (Ministry of Health, Labour and Welfare, Japan)

JapanGovernment agencySite in Japanese

Japan's health ministry page on developmental disability support policy, covering autism, ADHD, Tourette, stuttering and related conditions, with a link to the national support center.

Enabling Guide (SG Enable)

SingaporeGovernment-funded service

Singapore directory of disability schemes, services and supports developed by SG Enable, with sections on autism and intellectual disability.

Status: says it is developed by SG Enable with funding from donors and the Singapore government

Heep Hong Society

Hong KongCharity or nonprofit

Hong Kong education and rehabilitation organization offering early intervention, services for children with dyslexia or ADHD, programs for autistic youth, and parent resources.

Status: footer lists it under Tax-exempt Charities (IR file number shown)

Japan Autism Society

JapanSupport and advocacy organizationSite in Japanese

National autism organization in Tokyo working on policy advocacy, consultations, public awareness, membership and national conventions.

Status: footer identifies it as a general incorporated association

The National Trust (Government of India)

IndiaGovernment agency

Indian statutory body under the Ministry of Social Justice and Empowerment supporting people with autism, cerebral palsy, intellectual disability and multiple disabilities, and their families.

Status: statutory body of the Ministry of Social Justice and Empowerment, created under Act 44 of 1999

AMA: Associação de Amigos do Autista

BrazilCharity or nonprofitSite in Portuguese

Brazilian association based in São Paulo that provides free educational and therapeutic support for people with autism through a multidisciplinary team.

Status: declared an entity of public utility ("Entidade declarada de utilidade pública") by federal, state and municipal decrees, per its site

CLIMA: Clínica Mexicana de Autismo y alteraciones del Desarrollo

MexicoCharity or nonprofitSite in Spanish

Mexican civil association founded in 1990 that offers specialized programs, training and family support for people with autism spectrum disorder.

Status: describes itself as a non-profit institution (institución sin fines de lucro)

Alut

IsraelSupport and advocacy organizationSite in Hebrew

Israeli autism association offering support to people on the autism spectrum and their families, including kindergartens, camps, clubs, diagnostics and rights advocacy.

Status: describes itself as an association (amuta)

Dubai Autism Center

United Arab EmiratesCharity or nonprofit

Dubai nonprofit serving children with autism spectrum disorders through educational programs and an annual autism awareness campaign.

Status: describes itself as a nonprofit

Tohum Otizm Vakfı

TurkeySupport and advocacy organizationSite in Turkish

Autism foundation in Istanbul working on education for autistic people, autism awareness and social inclusion; runs a school and scholarship programs.

Status: name identifies it as a foundation (vakıf)

Attention Deficit Disorder Association (ADDA)

InternationalCharity or nonprofit

International nonprofit that runs virtual support groups, educational webinars and a conference for adults with ADHD.

Status: international non-profit

World Federation of ADHD

SwitzerlandProfessional body

International professional organization that brings together clinicians, researchers and experts to advance ADHD science, education and clinical practice.

CDC: ADHD

United StatesGovernment agency

Public information from the US Centers for Disease Control and Prevention (CDC) about ADHD.

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

United StatesCharity or nonprofit

US nonprofit offering evidence-based resources, education, support, community connections and advocacy for people affected by ADHD.

Status: nonprofit

NIMH: Attention-deficit/hyperactivity disorder

United StatesGovernment agency

Public information from the US National Institute of Mental Health (NIMH) about ADHD.

Understood

United StatesCharity or nonprofitSite in English and Spanish

US nonprofit offering free, expert-reviewed guidance, tools and community support for people with ADHD, dyslexia, dyscalculia and other learning and thinking differences.

Status: tax-exempt 501(c)(3) charitable organization

Canadian ADHD Resource Alliance (CADDRA)

CanadaProfessional body

Member-based alliance of Canadian health and research professionals working on ADHD care through education, guidelines, research and advocacy.

Learning Disabilities Association of Canada

CanadaCharity or nonprofitSite in English and French

Canadian organization supporting people with learning disabilities through advocacy, a research hub, scholarships, a legal hub and an annual national conference.

Status: charitable registration shown on its site

ADHD Foundation: The Neurodiversity Charity

United KingdomCharity or nonprofit

UK charity offering advocacy, support, training and research for people with ADHD, autism and other neurodevelopmental conditions.

Status: registered charity in England and Wales

Leadership: describes itself as "the largest user-led organisation of its kind in Europe"

ADHD UK

United KingdomCharity or nonprofit

UK charity offering online support groups, information, research and campaigns for people with ADHD.

Status: charity number shown on its site

Leadership: describes itself as "by people with ADHD for people with ADHD"

NHS: ADHD in children and young people

United KingdomGovernment agency

Public information from the UK National Health Service about ADHD.

ADHD Ireland

IrelandCharity or nonprofit

Irish charity providing information, resources and networking for people with ADHD, parents and professionals.

Status: registered charity (CHY number shown on its site)

ADHD Australia

AustraliaSupport and advocacy organization

Australian ADHD information, advocacy and community support for people with ADHD, families, educators, employers and clinicians.

ADHD New Zealand

New ZealandSupport and advocacy organization

New Zealand organization sharing ADHD information, regional directories and community support, and running events.

ADHD Europe

BelgiumFederation or network

European umbrella organization that represents ADHD self-support and patient advocacy groups across Europe.

Status: International not-for-profit association (AISBL), registered in Belgium

ADHS Deutschland e.V.

GermanyCharity or nonprofitSite in German

German ADHD self-help organization with local and online self-help groups and a nationwide telephone counseling network.

Status: describes itself as a non-profit association (gemeinnütziger Verein)

Leadership: describes itself as a self-help organization

HyperSupers TDAH France

FranceCharity or nonprofitSite in French

Paris-based French association supporting families, adults and children affected by ADHD, with publications, training, events and peer support groups.

Status: describes itself as an Association Loi 1901 and states recognition as a public-utility organization and approval by the French health ministry

Developmental disability support policies (Ministry of Health, Labour and Welfare, Japan)

JapanGovernment agencySite in Japanese

Japan's health ministry page on developmental disability support policy, covering autism, ADHD, Tourette, stuttering and related conditions, with a link to the national support center.

Heep Hong Society

Hong KongCharity or nonprofit

Hong Kong education and rehabilitation organization offering early intervention, services for children with dyslexia or ADHD, programs for autistic youth, and parent resources.

Status: footer lists it under Tax-exempt Charities (IR file number shown)

Associação Brasileira do Déficit de Atenção (ABDA)

BrazilSupport and advocacy organizationSite in Portuguese

Brazilian association for people with ADHD, sharing information and listing support groups, professionals, articles, news and events.

International Dyslexia Association (IDA)

United StatesCharity or nonprofit

Nonprofit charity focused on dyslexia, with fact sheets, webinars, a Dyslexia Handbook, branches and global partners.

Status: describes itself as a nonprofit 501(c)(3) charity

Made By Dyslexia

InternationalCharity or nonprofit

Global charity that teaches people about Dyslexic Thinking and promotes it at home, at work and in schools.

Status: global charity (registered charity number shown on the site)

Leadership: describes itself as "led by successful dyslexics"

Decoding Dyslexia

United StatesFederation or network

Network of parent-led grassroots movements that raises dyslexia awareness and advocates for education policy.

Leadership: parent-led grassroots movements, as stated on the site

Learning Disabilities Association of America

United StatesCharity or nonprofit

US organization offering support, resources and advocacy for people with learning disabilities, their families and the professionals who serve them.

National Center for Learning Disabilities

United StatesCharity or nonprofit

US organization that works to improve the lives of people with learning disabilities through research and advocacy for fairer policies.

Understood

United StatesCharity or nonprofitSite in English and Spanish

US nonprofit offering free, expert-reviewed guidance, tools and community support for people with ADHD, dyslexia, dyscalculia and other learning and thinking differences.

Status: tax-exempt 501(c)(3) charitable organization

Yale Center for Dyslexia and Creativity

United StatesUniversity or research center

Yale School of Medicine center that shares dyslexia research and highlights the creative and intellectual strengths of people with dyslexia.

Status: Yale School of Medicine affiliation shown in the page title

Dyslexia Canada

CanadaCharity or nonprofit

National charity formed in 2016 to secure fair, equitable education for Canadian children with dyslexia, through advocacy, public education and family support.

Status: shows a charitable registration number on its site

Learning Disabilities Association of Canada

CanadaCharity or nonprofitSite in English and French

Canadian organization supporting people with learning disabilities through advocacy, a research hub, scholarships, a legal hub and an annual national conference.

Status: charitable registration shown on its site

British Dyslexia Association

United KingdomCharity or nonprofit

UK charity that speaks for dyslexic people and offers assessments, a helpline, training and one-to-one tuition.

Status: registered charity in England and Wales

Dyslexia Scotland

Scotland (United Kingdom)Charity or nonprofit

Scottish charity that supports people with dyslexia through a helpline, information and training, and campaigns for a dyslexia-friendly Scotland.

Status: Scottish charity (registration numbers shown on the site)

NHS: Dyslexia in children

United KingdomGovernment agency

Public information from the UK National Health Service about dyslexia.

Dyslexia Ireland

IrelandCharity or nonprofit

Irish organization that offers information, support services, advocacy and awareness-raising for people affected by dyslexia, including assessments for dyslexia and dyscalculia.

Australian Dyslexia Association Inc.

AustraliaCharity or nonprofit

Australian non-profit association providing pre-assessment screening, assessments, educational intervention and training for people who struggle with spoken and written language.

Status: describes itself as an incorporated non-profit association

SPELD NZ

New ZealandCharity or nonprofit

New Zealand organization providing assessments, one-to-one tuition and training for families and teachers, supporting people with dyslexia and other specific learning disabilities.

Status: not-for-profit organization

Associazione Italiana Dislessia (AID)

ItalySupport and advocacy organizationSite in Italian

Italian association based in Bologna that supports people with specific learning disorders (DSA) through training courses, student resources, webinars and awareness campaigns.

Dyslexia Association of Singapore (DAS)

SingaporeSupport and advocacy organization

Singapore social service organization offering assessments, screenings and programs for people with dyslexia and others who learn differently.

Heep Hong Society

Hong KongCharity or nonprofit

Hong Kong education and rehabilitation organization offering early intervention, services for children with dyslexia or ADHD, programs for autistic youth, and parent resources.

Status: footer lists it under Tax-exempt Charities (IR file number shown)

Madras Dyslexia Association

IndiaCharity or nonprofit

Chennai nonprofit helping children with dyslexia through awareness programs, assessment, counseling, remedial programs, teacher training and an assistive reading app.

Status: describes itself as a non-profit service organization

Learning Disabilities Association of America

United StatesCharity or nonprofit

US organization offering support, resources and advocacy for people with learning disabilities, their families and the professionals who serve them.

National Center for Learning Disabilities

United StatesCharity or nonprofit

US organization that works to improve the lives of people with learning disabilities through research and advocacy for fairer policies.

Understood

United StatesCharity or nonprofitSite in English and Spanish

US nonprofit offering free, expert-reviewed guidance, tools and community support for people with ADHD, dyslexia, dyscalculia and other learning and thinking differences.

Status: tax-exempt 501(c)(3) charitable organization

Learning Disabilities Association of Canada

CanadaCharity or nonprofitSite in English and French

Canadian organization supporting people with learning disabilities through advocacy, a research hub, scholarships, a legal hub and an annual national conference.

Status: charitable registration shown on its site

British Dyslexia Association

United KingdomCharity or nonprofit

UK charity that speaks for dyslexic people and offers assessments, a helpline, training and one-to-one tuition.

Status: registered charity in England and Wales

Dyslexia Ireland

IrelandCharity or nonprofit

Irish organization that offers information, support services, advocacy and awareness-raising for people affected by dyslexia, including assessments for dyslexia and dyscalculia.

Associazione Italiana Dislessia (AID)

ItalySupport and advocacy organizationSite in Italian

Italian association based in Bologna that supports people with specific learning disorders (DSA) through training courses, student resources, webinars and awareness campaigns.

World Federation of Occupational Therapists (WFOT)

InternationalFederation or network

International organization representing the occupational therapy profession; sets education standards and works with national member organizations.

Status: states it has been in official relations with the World Health Organization since 1959

American Occupational Therapy Association (AOTA)

United StatesProfessional body

US professional membership association supporting the practice, teaching and research of occupational therapy.

Learning Disabilities Association of America

United StatesCharity or nonprofit

US organization offering support, resources and advocacy for people with learning disabilities, their families and the professionals who serve them.

National Center for Learning Disabilities

United StatesCharity or nonprofit

US organization that works to improve the lives of people with learning disabilities through research and advocacy for fairer policies.

Canadian Association of Occupational Therapy (CAOT)

CanadaProfessional body

Ottawa-based national association that provides leadership in developing and promoting the occupational therapy profession in Canada and internationally.

Learning Disabilities Association of Canada

CanadaCharity or nonprofitSite in English and French

Canadian organization supporting people with learning disabilities through advocacy, a research hub, scholarships, a legal hub and an annual national conference.

Status: charitable registration shown on its site

Royal College of Occupational Therapists (RCOT)

United KingdomProfessional body

Charity that champions occupational therapists and the profession in the UK, with a directory of independent HCPC-registered occupational therapists.

Status: registered charity in England and Wales and in Scotland

Dyslexia Ireland

IrelandCharity or nonprofit

Irish organization that offers information, support services, advocacy and awareness-raising for people affected by dyslexia, including assessments for dyslexia and dyscalculia.

Occupational Therapy Australia (OTA)

AustraliaProfessional body

Peak membership body for occupational therapists in Australia, working through advocacy, education and community engagement.

Associazione Italiana Dislessia (AID)

ItalySupport and advocacy organizationSite in Italian

Italian association based in Bologna that supports people with specific learning disorders (DSA) through training courses, student resources, webinars and awareness campaigns.

World Federation of Occupational Therapists (WFOT)

InternationalFederation or network

International organization representing the occupational therapy profession; sets education standards and works with national member organizations.

Status: states it has been in official relations with the World Health Organization since 1959

American Occupational Therapy Association (AOTA)

United StatesProfessional body

US professional membership association supporting the practice, teaching and research of occupational therapy.

Canadian Association of Occupational Therapy (CAOT)

CanadaProfessional body

Ottawa-based national association that provides leadership in developing and promoting the occupational therapy profession in Canada and internationally.

CanChild (McMaster University): developmental coordination disorder

CanadaUniversity or research center

Research center at McMaster University in Hamilton, Ontario that shares research-based information on developmental coordination disorder (DCD) for families and professionals.

Status: McMaster University research center

Dyspraxia Foundation

United KingdomCharity or nonprofit

UK charity providing information and support on dyspraxia and developmental coordination disorder (DCD) for individuals, families and professionals.

Status: states it is a registered charity and a company registered in England limited by guarantee

NHS: Developmental co-ordination disorder (dyspraxia) in children

United KingdomGovernment agency

Public information from the UK National Health Service about developmental coordination disorder (dyspraxia).

Royal College of Occupational Therapists (RCOT)

United KingdomProfessional body

Charity that champions occupational therapists and the profession in the UK, with a directory of independent HCPC-registered occupational therapists.

Status: registered charity in England and Wales and in Scotland

Dyspraxia/DCD Ireland

IrelandCharity or nonprofit

Irish organization supporting children and adults with dyspraxia/DCD and their families with occupational therapy, counseling, training and employment supports.

Status: shows a registered charity number (RCN) and a Companies Registration Office number

Occupational Therapy Australia (OTA)

AustraliaProfessional body

Peak membership body for occupational therapists in Australia, working through advocacy, education and community engagement.

Dyspraxia Support Group of N.Z. (Inc.)

New ZealandSupport and advocacy organization

Christchurch-based support group working to empower people affected by developmental coordination disorder (dyspraxia) and increase understanding of it.

Status: "(Inc.)" in its name indicates an incorporated society

CDC: Tourette syndrome

United StatesGovernment agency

Public information from the US Centers for Disease Control and Prevention (CDC) about Tourette syndrome.

NINDS: Tourette syndrome

United StatesGovernment agency

Public information from the US National Institute of Neurological Disorders and Stroke (NINDS) about Tourette syndrome.

Tourette Association of America

United StatesCharity or nonprofit

US nonprofit that raises awareness, supports research and offers help to people affected by Tourette and tic disorders.

Status: nonprofit 501(c)(3) organization

Also listed in: ESSTS directory of Tourette associations

Tourette Canada

CanadaCharity or nonprofit

National, volunteer-based Canadian organization that builds awareness and understanding of Tourette syndrome through education, advocacy and community outreach.

Also listed in: ESSTS directory of Tourette associations

NHS: Tourette syndrome

United KingdomGovernment agency

Public information from the UK National Health Service about Tourette syndrome.

Tourettes Action

United KingdomCharity or nonprofit

UK support and research charity working to improve the lives of people living with Tourette syndrome.

Status: registered charity (number shown on the site)

Also listed in: ESSTS directory of Tourette associations

Tourette's Australia

AustraliaCharity or nonprofit

Australian charity supporting individuals and families affected by Tourette syndrome.

Status: ACNC registered charity; deductible gift recipient

Also listed in: ESSTS directory of Tourette associations

Tourette's Association of New Zealand

New ZealandCharity or nonprofit

New Zealand association formed in 2013 that raises awareness, educates professionals, invests in research and provides support through a national network.

Status: states it became a registered charity in 2013

Also listed in: ESSTS directory of Tourette associations

Association Française du Syndrome de Gilles de La Tourette (AFSGT)

FranceCharity or nonprofitSite in French

French association supporting people with Tourette syndrome and their families through peer support groups, webinars, information for teachers and medical staff, and research grants.

Status: describes itself as an Association Loi 1901 registered with the Hauts-de-Seine prefecture

Also listed in: ESSTS directory of Tourette associations

Dansk Tourette Forening

DenmarkSupport and advocacy organizationSite in Danish

Danish Tourette association founded in 1984, offering events, a members' magazine, and groups for youth and adults.

Also listed in: ESSTS directory of Tourette associations

European Society for the Study of Tourette Syndrome (ESSTS)

EuropeProfessional body

Society coordinating research on Tourette syndrome across Europe and beyond, with annual meetings, training courses and European clinical guidelines.

Status: originally established in Copenhagen in 2000 and reformed in Bari, Italy in 2008

InteressenVerband Tic & Tourette Syndrom e. V. (IVTS)

GermanySupport and advocacy organizationSite in German

German association for people with tics and Tourette syndrome, offering information, counseling, workshops, online support cafés, and a finder for doctors and self-help groups.

Status: registered association (e. V.)

Also listed in: ESSTS directory of Tourette associations

Norsk Tourette Forening

NorwaySupport and advocacy organizationSite in Norwegian

Norwegian Tourette association offering peer contacts, regional chapters, and webinars.

Also listed in: ESSTS directory of Tourette associations

Polskie Stowarzyszenie Syndrom Tourette'a (PSST)

PolandSupport and advocacy organizationSite in Polish

Polish Tourette association offering support groups, phone and email help lines, training for patients, parents, teachers and specialists, and a psychologist consultation program for members.

Also listed in: ESSTS directory of Tourette associations

Tourette-Gesellschaft Deutschland e.V. (TGD)

GermanySupport and advocacy organizationSite in German

German association founded in Mannheim in 1993 that works on public awareness of Tourette syndrome and offers information, support groups and membership.

Status: registered association (e.V.)

Also listed in: ESSTS directory of Tourette associations

Österreichische Tourette Gesellschaft

AustriaSupport and advocacy organizationSite in German

Vienna-based Tourette self-help organization offering information on Tourette and tic disorders, support group meetings, and directories of doctors and psychotherapists.

Also listed in: ESSTS directory of Tourette associations

Developmental disability support policies (Ministry of Health, Labour and Welfare, Japan)

JapanGovernment agencySite in Japanese

Japan's health ministry page on developmental disability support policy, covering autism, ADHD, Tourette, stuttering and related conditions, with a link to the national support center.

Hong Kong Tourette Association

Hong KongSupport and advocacy organization

Hong Kong association offering care and support for patients with Tourette syndrome and tic disorders, with membership and information about Tourette.

Also listed in: ESSTS directory of Tourette associations

Tourette Syndrome Association of Japan

JapanCharity or nonprofitSite in Japanese

Japanese nonprofit offering a peer support phone line, information on Tourette and chronic tic disorders, a list of medical institutions, and community meetups and symposiums.

Status: name carries the Japanese NPO corporation (nonprofit) designation

Also listed in: ESSTS directory of Tourette associations

Fundación Amigos del Tourette Chile

ChileCharity or nonprofitSite in Spanish

Chilean nonprofit offering free information and resources for children, families and caregivers, plus talks, workshops, teacher training and awareness campaigns.

Status: describes itself as a nonprofit organization

Also listed in: ESSTS directory of Tourette associations

Fundación Mexicana de Tourette

MexicoSupport and advocacy organizationSite in Spanish

Mexican foundation that aims to educate and raise awareness about Tourette syndrome, support families and school staff, and build a directory of specialists.

Leadership: describes itself as a group of Mexicans who have Tourette syndrome

Also listed in: ESSTS directory of Tourette associations

International OCD Foundation

United StatesCharity or nonprofit

US-based nonprofit that offers OCD education, support resources, professional training and research funding.

Status: 501(c)(3) nonprofit organization

NIMH: Obsessive-compulsive disorder

United StatesGovernment agency

Public information from the US National Institute of Mental Health (NIMH) about obsessive-compulsive disorder (OCD).

Alberta Obsessive Compulsive Disorder Foundation

CanadaCharity or nonprofit

Edmonton-based Alberta foundation providing support, education and information about obsessive compulsive disorder.

Status: describes itself as a charitable organization

Also listed in: IOCDF Global Partners

NHS: Obsessive compulsive disorder (OCD)

United KingdomGovernment agency

Public information from the UK National Health Service about obsessive compulsive disorder (OCD).

OCD Action

United KingdomCharity or nonprofit

UK charity that provides support and information to anyone affected by OCD, including a helpline and forum.

Status: registered charity (number shown on the site)

Also listed in: IOCDF Global Partners

OCD-UK

United KingdomCharity or nonprofit

UK charity that provides advice, information and support for people affected by OCD and campaigns to end OCD stigma.

Status: national OCD charity (registered charity number shown on the site)

Leadership: describes itself as "run by, and for people with lived experience of OCD"

OCD Ireland

IrelandSupport and advocacy organization

Irish organization supporting people with OCD, body dysmorphic disorder and trichotillomania through free online support groups led by trained facilitators.

Also listed in: IOCDF Global Partners

OCD WA

AustraliaSupport and advocacy organization

Western Australian organization offering people with OCD and related disorders peer support, social events and appointment advocacy, plus education and clinician training.

Also listed in: IOCDF Global Partners

Ananke (Norsk OCD og angstforening)

NorwaySupport and advocacy organizationSite in Norwegian

Norwegian organization for people with OCD, anxiety disorders, trichotillomania and skin-picking, offering peer contacts, brochures and events.

Also listed in: IOCDF Global Partners

OCD Suomi ry

FinlandSupport and advocacy organizationSite in Finnish

Finnish OCD association offering peer support groups and workshops, run by volunteers.

Status: name carries the Finnish registered-association suffix (ry)

Also listed in: IOCDF Global Partners

Svenska OCD-förbundet

SwedenCharity or nonprofitSite in Swedish

Swedish non-profit association supporting people with OCD and related diagnoses, and their relatives.

Status: describes itself as an ideell förening (non-profit association)

Also listed in: IOCDF Global Partners

OCD and Anxiety Support HK

Hong KongCharity or nonprofit

Hong Kong charity aiming to help people with OCD and anxiety disorders lead the best life possible and reduce stigma in Asia.

Status: describes itself as a registered charity

Also listed in: IOCDF Global Partners

OCDNetworkSG (OCD Network Singapore)

SingaporeCharity or nonprofit

Singapore non-profit society, operating since 2018, that supports people with OCD and their caregivers and trains professionals in evidence-based treatment.

Status: describes itself as a non-profit society

Also listed in: IOCDF Global Partners

Fundación Hablemos de TOC

ChileSupport and advocacy organizationSite in Spanish

Chilean OCD foundation offering psychoeducation and a list of OCD specialists in Chile.

Also listed in: IOCDF Global Partners

DLDandMe

InternationalSupport and advocacy organization

Volunteer organization raising awareness of developmental language disorder and sharing support, resources and brief summaries of current evidence.

RADLD (Raising Awareness of Developmental Language Disorder)

InternationalFederation or network

International advocacy campaign that shares information and resources about developmental language disorder and runs an annual awareness day.

American Speech-Language-Hearing Association (ASHA)

United StatesProfessional body

US national professional, scientific and credentialing association for speech-language pathologists, audiologists, scientists, assistants and students.

National Institute on Deafness and Other Communication Disorders (NIDCD)

United StatesGovernment agency

U.S. government institute that funds communication disorder research and publishes health information, including a page on developmental language disorder.

Speech-Language & Audiology Canada (SAC)

CanadaProfessional body

National association for speech-language pathologists, audiologists and communication health assistants in Canada.

Royal College of Speech and Language Therapists (RCSLT)

United KingdomProfessional body

Professional body for speech and language therapists in the UK, providing leadership, guidance, research and education.

Status: registered charity in England and Wales and in Scotland

Speech and Language UK

United KingdomCharity or nonprofit

UK organization that helps children and young people develop speech, language and communication skills, with tools for schools and nurseries and advice for families.

Irish Association of Speech and Language Therapists (IASLT)

IrelandProfessional body

Recognized professional body representing speech and language therapists in Ireland: sets standards, informs policy and advocates.

Status: legal name given as "The Irish Association of Speech and Language Therapists CLG"

Speech Pathology Australia

AustraliaProfessional body

National peak body for the speech pathology profession in Australia, with a Find a speech pathologist directory.

International Stuttering Association

InternationalFederation or network

International association of national stuttering groups working to improve quality of life for people who stutter and help others understand stuttering.

Leadership: an organization of and for people who stutter

American Speech-Language-Hearing Association (ASHA)

United StatesProfessional body

US national professional, scientific and credentialing association for speech-language pathologists, audiologists, scientists, assistants and students.

FRIENDS: The National Association of Young People Who Stutter

United StatesCharity or nonprofit

US nonprofit offering support, education and events for children and teens who stutter, their families and clinicians.

Status: 501(c)(3) tax-exempt charitable organization, as stated on its site

National Stuttering Association

United StatesCharity or nonprofit

Nonprofit offering support groups, educational tools, and resources for people who stutter, their families, speech-language pathologists, and educators.

Status: describes itself as an "accredited 501(c)(3) nonprofit organization"

Stuttering Foundation (Stuttering Foundation of America)

United StatesCharity or nonprofit

Nonprofit that provides information and help on stuttering for young children, teens and adults, and for families and professionals.

Status: tax-exempt organization under section 501(c)(3)

Speech-Language & Audiology Canada (SAC)

CanadaProfessional body

National association for speech-language pathologists, audiologists and communication health assistants in Canada.

Michael Palin Centre for Stammering

United KingdomClinic or health service

London center run by Whittington Health, part of the NHS, offering therapy to children, young people and adults who stammer.

Status: run by Whittington Health NHS, with support from the Stuttering Foundation and the Whittington Health Charity

NHS: Stammering

United KingdomGovernment agency

Public information from the UK National Health Service about stammering.

Royal College of Speech and Language Therapists (RCSLT)

United KingdomProfessional body

Professional body for speech and language therapists in the UK, providing leadership, guidance, research and education.

Status: registered charity in England and Wales and in Scotland

STAMMA

United KingdomCharity or nonprofit

UK charity offering information, a helpline, webchat, and advocacy for people who stammer and their families.

Status: describes itself as the national UK charity

Irish Association of Speech and Language Therapists (IASLT)

IrelandProfessional body

Recognized professional body representing speech and language therapists in Ireland: sets standards, informs policy and advocates.

Status: legal name given as "The Irish Association of Speech and Language Therapists CLG"

Speak Easy Association (Australia)

AustraliaSupport and advocacy organization

Describes itself as Australia's peak body supporting people who stutter, with support groups across the country and online.

Speech Pathology Australia

AustraliaProfessional body

National peak body for the speech pathology profession in Australia, with a Find a speech pathologist directory.

Bundesvereinigung Stottern & Selbsthilfe e.V. (BVSS)

GermanyCharity or nonprofitSite in German

German non-profit association in Cologne, formed by people who stutter, offering an information and counseling center, self-help groups, seminars and publications.

Status: describes itself as a gemeinnütziger Verein (non-profit association)

Leadership: describes itself as formed by people who stutter, for people who stutter and their relatives

Developmental disability support policies (Ministry of Health, Labour and Welfare, Japan)

JapanGovernment agencySite in Japanese

Japan's health ministry page on developmental disability support policy, covering autism, ADHD, Tourette, stuttering and related conditions, with a link to the national support center.

World Federation of Occupational Therapists (WFOT)

InternationalFederation or network

International organization representing the occupational therapy profession; sets education standards and works with national member organizations.

Status: states it has been in official relations with the World Health Organization since 1959

American Occupational Therapy Association (AOTA)

United StatesProfessional body

US professional membership association supporting the practice, teaching and research of occupational therapy.

STAR Institute for Sensory Processing

United StatesCharity or nonprofit

Colorado nonprofit offering therapy, parent coaching, and professional training, running research, and sharing free resources on sensory processing.

Status: 501(c)(3) nonprofit organization

Canadian Association of Occupational Therapy (CAOT)

CanadaProfessional body

Ottawa-based national association that provides leadership in developing and promoting the occupational therapy profession in Canada and internationally.

Royal College of Occupational Therapists (RCOT)

United KingdomProfessional body

Charity that champions occupational therapists and the profession in the UK, with a directory of independent HCPC-registered occupational therapists.

Status: registered charity in England and Wales and in Scotland

Occupational Therapy Australia (OTA)

AustraliaProfessional body

Peak membership body for occupational therapists in Australia, working through advocacy, education and community engagement.

Synesthesia Battery (David Eagleman)

InternationalResearch project or tool

Standard set of online synesthesia tests, with scoring, for synesthetes and researchers; run by David Eagleman.

American Synesthesia Association (ASA)

United StatesCharity or nonprofit

Nonprofit sharing general information about synesthesia, with conferences and membership. Its homepage announced a 2024 conference when we checked.

Status: describes itself as a "501(c)(3) tax exempt, not-for-profit organization"

Synaesthesia Research Group (University of Sussex)

United KingdomUniversity or research center

University of Sussex research group studying synesthesia, with public information and an online questionnaire for people who want to take part in research.

Down Syndrome International

InternationalFederation or network

Global network that helps people with Down syndrome and their families advocate for their rights.

Status: registered charity (number shown on the site)

Leadership: a global network of people with Down syndrome, as stated on the site

Inclusion International

United KingdomFederation or network

International network of people with intellectual disabilities and their families that works for inclusion worldwide.

Status: registered charity (number shown on the site)

Leadership: a network of people with intellectual disabilities and their families, as stated on the site

International Society for Augmentative and Alternative Communication (ISAAC)

InternationalSupport and advocacy organization

International society working to improve the lives of children and adults who use augmentative and alternative communication (AAC).

Special Olympics

InternationalCharity or nonprofit

Global sports movement that offers training and competition for people with intellectual disabilities.

Status: tax exempt 501(c)3 nonprofit organization

American Association on Intellectual and Developmental Disabilities (AAIDD)

United StatesProfessional body

US membership organization that supports policy, research, practice and human rights for people with intellectual and developmental disabilities.

National Down Syndrome Society (NDSS)

United StatesCharity or nonprofit

US organization that offers education, employment, health, research and advocacy programs for people with Down syndrome and their families.

Status: shows Candid and Charity Navigator logos

The Arc of the United States

United StatesCharity or nonprofit

National disability nonprofit that advocates for and supports people with intellectual and developmental disabilities and their families.

Status: 501(c)(3) organization

Inclusion Canada

CanadaFederation or network

National federation of people with an intellectual disability, their families, allies and organizations, working on rights and community belonging.

Status: charity registration number shown on its site

Leadership: describes itself as "the national federation of people with an intellectual disability, their families, allies, and organizations"

Mencap

United KingdomCharity or nonprofit

UK charity that supports people with a learning disability and campaigns for a fairer society.

Status: registered charity in England and Wales and in Scotland (numbers shown on the site)

Inclusion Ireland

IrelandCharity or nonprofit

Irish organization that advocates for the rights of people with intellectual disabilities and supports them to have their voices heard.

Inclusion Europe

BelgiumFederation or network

European association that advocates for the rights and full participation of people with intellectual disabilities and their families.

Status: registered non-profit organization under Belgian law

Enabling Guide (SG Enable)

SingaporeGovernment-funded service

Singapore directory of disability schemes, services and supports developed by SG Enable, with sections on autism and intellectual disability.

Status: says it is developed by SG Enable with funding from donors and the Singapore government

The National Trust (Government of India)

IndiaGovernment agency

Indian statutory body under the Ministry of Social Justice and Empowerment supporting people with autism, cerebral palsy, intellectual disability and multiple disabilities, and their families.

Status: statutory body of the Ministry of Social Justice and Empowerment, created under Act 44 of 1999

Down Syndrome South Africa (DSSA)

South AfricaCharity or nonprofit

South African national umbrella and parent advocacy body for people with Down syndrome and other intellectual disabilities, with regional associations and support groups.

Status: states it is a non-profit organization (NPO number shown on its site)